Tom Kindlon has had ME/CFS since 1989. He needs a wheelchair if he has to go more than 50 metres to the house a lot of the time. Tom is at the severe end of the ME (myalgia encephalomyelitis) spectrum, he says, and it took him five years to get a diagnosis.

“Initially, I had mainly muscle and flu-like symptoms. My health went downhill over time and it was only when I became really bad in 1994 that I was diagnosed.”