This June marks the Irish Motor Neurone Disease Association’s (IMNDA) national campaign to raise awareness of Motor Neurone Disease (MND) and how it can affect a person’s speech.

Caleb Sheehan, 51, from Cork is the #Voice4MND Sponsored Silence ambassador.

He shares his experience of MND to highlight the impact it has on his life and the lives of over 400 people across Ireland. More than 80% of people living with MND will experience some form of speech difficulty during their illness – some will lose their voice completely.

“My speech is significantly impaired, and my swallowing has become more problematic, but I’m alive! I have hope,” says Caleb.

The sponsored silence campaign #Voice4MND takes place in June. People are asked to stay silent for a minimum of 30 minutes so they can experience what it would be like to lose their voice. All you have to do, is to pick a day and duration for your silence.

To sign up, visit and fill out the registration form. Spread awareness by sharing your sponsored silence on social media by using #Voice4MND.

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